Belgium
formerly colombia
- 26,036
- 37,333
- Joined
- Jan 12, 2013
Hello everyone. I've recently started raising money to help my parents a bit and also aid in my personal recovery.
First of all I would like to thank Method Man for his support and letting me create this thread.
Next I am thanking everyone in advance for reading or donating.
If you would like to donate any amount at all I appreciate it. Doesn't matter which amount, even $0.01 is appreciated.
Paypal email: [email protected]
Here is my story:
I will also answer any questions regarding the surgery, living with half a lung less, ...
Feel free to ask me anything you want.
I am currently 19 years old turning 20 on the 14th of April.
I had a very rare congenital defect called pulmonary sequestration.
I have the intralobar version of the disorder, meaning the malicious lung tissue is located in my lung, not outside of the lung.
Around the start of October 2013 I coughed up large blood clots which I have done before when I had pneumonia a few years back. There was nothing on a regular CT scan though so they did another one with constrast fluid which showed the disorder. I had an aorta sized artery branching off from my aorta right next to my heart and it went into the bottom of my right lung where it spread in smaller blood vessels throughout my bottom lobe.
The arterial pressure was too high because of the size of the artery and its branching off into half of my right lung and I had developped a tear causing a small lung hemorrhage. If the tear was just a few millimeters bigger I would have died instantly.
I saw one of the top lung surgeons immediately and got surgery a few days later on the 17th of october. Because that artery was located right next to my heart and the existing tear there was also a moderate/high chance I'd die during surgery. Unfortunately for me I also had one of the most complex cases of said defect the surgeon had ever seen.
The surgery actually went really well and the surgeon managed to remove half my right lung and the artery via laparascopy.
I remained in the hospital for 5 days with a chest tube, urinal catheter, central catheter, arterial catheter and epidural catheter. I received around 6 or 7 painkillers including morphine and something 800x more powerful than morphine and was still in a lot of pain until my chest tube was removed.
After I was released I had quite a few lasting effects. My nerves in my right leg and right hand are damaged, most likely permanently, so they feel a bit weird and I can't control them properly sometimes. Aside from that I also have posttraumatic pains in my legs and back a lot.
As for school I dropped out of nursing school in January because I felt too weak all the time, and had constant posttraumatic pains in my legs and back. I tried going to school but lasted 3 days in a row at most before having trouble breathing or being in too much pain so I dropped out.
I've been home since January and have struggled with depression and the effects of a stress disorder since.
Currently I am following breathing therapy at my physiologist and attend sessions with my psychologist.
Due to recent developments in my state of mind she has concluded I require therapy for PTSD, which I will be starting with a psychotherapist soon.
I also have an appointment with a renowned psychiatrist to evaluate my progress.
As for medication I use a Symbicort inhaler twice a day, my antidepressant Effexor 75mg when I wake up, 50-100mg of Tramadol for the posttraumatic pains throughout the day and an antidepressant called Trazolan before bed.
Recovery takes about 6 to 9 months and 1/3 of people getting this surgery fully recover, 1/3 have occasional issues and 1/3 have lasting problems. I have to wait and see which group I'm in but for now I'm not too positive about it.
Thank you very much for taking the time to read this. I assure you I am speaking the truth.
Just reading this also spreads awareness of this rare condition you most likely have never heard about.
Again, if anyone wants to donate, my paypal is at the top and you are very much appreciated.
Here are some links for those requiring more evidence.
This is a screenshot link to a radiology report of mine.
I am Belgian so it is in Dutch unfortunately but you can see the name matches and you can use google translate if you want.
http://gyazo.com/e0268ec1425825c98b89e3c6546a09c7
Here is a x-ray from that radiology appointment:
Here is a side view. Both of these are post surgery.
The surgeon's work is so clean you can barely see that half of my right lung was removed.
Update: Started feeling better again for a while. We raided around $300 and my momma damn near shed a tear
I've been struggling again though and last week got put in a mental ward by the ER for stress induced psychosis from my grandfather's death.
Stayed there a week and the price is well...
Verpleegdagprijs = daily price
I haven't gotten the bill yet but we're looking at 2-3k euros again.
I want to lend my hand again and see if NT Supports
First of all I would like to thank Method Man for his support and letting me create this thread.
Next I am thanking everyone in advance for reading or donating.
If you would like to donate any amount at all I appreciate it. Doesn't matter which amount, even $0.01 is appreciated.
Paypal email: [email protected]
Here is my story:
I will also answer any questions regarding the surgery, living with half a lung less, ...
Feel free to ask me anything you want.
I am currently 19 years old turning 20 on the 14th of April.
I had a very rare congenital defect called pulmonary sequestration.
I have the intralobar version of the disorder, meaning the malicious lung tissue is located in my lung, not outside of the lung.
Around the start of October 2013 I coughed up large blood clots which I have done before when I had pneumonia a few years back. There was nothing on a regular CT scan though so they did another one with constrast fluid which showed the disorder. I had an aorta sized artery branching off from my aorta right next to my heart and it went into the bottom of my right lung where it spread in smaller blood vessels throughout my bottom lobe.
The arterial pressure was too high because of the size of the artery and its branching off into half of my right lung and I had developped a tear causing a small lung hemorrhage. If the tear was just a few millimeters bigger I would have died instantly.
I saw one of the top lung surgeons immediately and got surgery a few days later on the 17th of october. Because that artery was located right next to my heart and the existing tear there was also a moderate/high chance I'd die during surgery. Unfortunately for me I also had one of the most complex cases of said defect the surgeon had ever seen.
The surgery actually went really well and the surgeon managed to remove half my right lung and the artery via laparascopy.
I remained in the hospital for 5 days with a chest tube, urinal catheter, central catheter, arterial catheter and epidural catheter. I received around 6 or 7 painkillers including morphine and something 800x more powerful than morphine and was still in a lot of pain until my chest tube was removed.
After I was released I had quite a few lasting effects. My nerves in my right leg and right hand are damaged, most likely permanently, so they feel a bit weird and I can't control them properly sometimes. Aside from that I also have posttraumatic pains in my legs and back a lot.
As for school I dropped out of nursing school in January because I felt too weak all the time, and had constant posttraumatic pains in my legs and back. I tried going to school but lasted 3 days in a row at most before having trouble breathing or being in too much pain so I dropped out.
I've been home since January and have struggled with depression and the effects of a stress disorder since.
Currently I am following breathing therapy at my physiologist and attend sessions with my psychologist.
Due to recent developments in my state of mind she has concluded I require therapy for PTSD, which I will be starting with a psychotherapist soon.
I also have an appointment with a renowned psychiatrist to evaluate my progress.
As for medication I use a Symbicort inhaler twice a day, my antidepressant Effexor 75mg when I wake up, 50-100mg of Tramadol for the posttraumatic pains throughout the day and an antidepressant called Trazolan before bed.
Recovery takes about 6 to 9 months and 1/3 of people getting this surgery fully recover, 1/3 have occasional issues and 1/3 have lasting problems. I have to wait and see which group I'm in but for now I'm not too positive about it.
Thank you very much for taking the time to read this. I assure you I am speaking the truth.
Just reading this also spreads awareness of this rare condition you most likely have never heard about.
Again, if anyone wants to donate, my paypal is at the top and you are very much appreciated.
Here are some links for those requiring more evidence.
This is a screenshot link to a radiology report of mine.
I am Belgian so it is in Dutch unfortunately but you can see the name matches and you can use google translate if you want.
http://gyazo.com/e0268ec1425825c98b89e3c6546a09c7
Here is a x-ray from that radiology appointment:
Here is a side view. Both of these are post surgery.
The surgeon's work is so clean you can barely see that half of my right lung was removed.
Update: Started feeling better again for a while. We raided around $300 and my momma damn near shed a tear
I've been struggling again though and last week got put in a mental ward by the ER for stress induced psychosis from my grandfather's death.
Stayed there a week and the price is well...
Verpleegdagprijs = daily price
I haven't gotten the bill yet but we're looking at 2-3k euros again.
I want to lend my hand again and see if NT Supports
Last edited:
good to hear. Hope you got my donation
. OP, if it helps, I know plenty of dudes who wouldn't have even tried to go back to school after surgery, so that says a lot about your character. You know you have fam here if you ever need to vent. My inbox stays empty, so I welcome all PMs from anyone 
. As corny as it may sound, sometimes you have to "walk through hell just to get to Heaven" (CL Smooth 
